Thursday, May 13, 2010


Yesterday, Albany opened back up for testing AND TREATING of CCSVI!!! I heard this from one of my new friends in Canada. This is now the only place in the US and Canada that I know of that is actually treating!!! I called the Albany Medical Center this morning and gave them all of my demographic information and the dr. is going to call me next week to discuss the procedure and schedule my appointment! WOOOOOOOOOOOOOOOOOOOOOOOHOOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!! I'm so excited I can hardly contain myself!!! I hope so much that my two aunts can get on the list too and we can go together!!! I don't know if I'll even qualify for the treatment, but I'm sure at least one of us will!! The dr. does not want his phone number being made completely public, but if you want his name and telephone number, email me at and I'll gladly give it to you.
I've already heard from 2 people from Canada and it's really neat to talk to people who actually know what it's like to live with this horrid disease. Oh, and the cost of testing and treatment is $5000.00. This beats the $10,000 plus travel expenses for Poland. $5000 is still $5000, and I don't have it, but by golly I'll figure that part out somehow!!! Me and my aunts need to start having some major yard sales to get our $15,000 plus travel expenses!!!
The dr. in Albany has only done around 20 CCSVI treatments so far (compared to over 300 that they've done in Poland) so of course that worries me a bit, but he's been working on veins for a long time, and has a ton of experience with veins, all of which, from my research, seems to be very impressive. We'll see what happens!! My aunt is on the phone as I type trying to get on the list. Oh this is so exciting I just want to laugh and cry all at once, but I can't because I have a diaper to change and dinner to get on the table:)


  1. p.s. Awesome that we have two amazing aunts to be in this journey with you:) Love you all!

  2. AWESOME!!! I am so excited about this! I love this idea because it will allow me to have some REAL insite on how you are feeling. I love your fighter mentality. You continue to amaze me in so many ways.
    love you

  3. We are all so excited!! We are praying every day that this will work!!
    Sam and I love you so much!