Well, I talked to Dr. Hatch yesterday afternoon and he made it very clear that there is nothing more he can do for me. He told me he's not willing to stent my veins and that he doesn't think my veins can handle much more. Felt like someone punched me right in the stomach. Jake came home from work at 11 last night and I just lost it. I wept and wept while he held me for a long time. I had held it together all day but I couldn't hold it together any longer. It is difficult enough to have a husband, a home, and 4 children ages 7 and under to take care of while one feels normal and healthy. But to try and do it all with very little energy and a whole lot of pain and dizziness is getting to be too much. Something's gotta give. I only have so much energy and there is so much to be done. It's causing my children to suffer because I don't have the energy to be extra patient with them, or run and play with them. It's not fair to them. My greatest joy comes from taking good care of my family and home, and I feel like a failure every second of the day. I had lost all hope and felt like there were no more answers for me. After I finally got it together and took some deep breaths, Jake showed me some research that he had done on his breaks at work. He told me that we are going to get someone to help with the housework 10 hours a week so that I can spend the energy that I do have on my children. This morning, he called from work and said that there was a lady coming to look at the house and discuss a plan. I am going to have to fight my tendency to feel guilty for not being able to do it all. Before bed, Jake gave the most beautiful prayer, acknowledging God's hand in our lives, knowing that He has a plan for us, and praying for us to continue to be guided and directed as to what to do for my health. I am so blessed to have Jake. I am married to my best friend in the world.
Email from my sweet husband:
the following is a dr that does stent the azygos. he claims that you have to place one that is 20% larger than the azygos.
i think he's our guy!
here's some info from a conference he spoke at
conversation talking about the medicine i mentioned
Anybody heard of Dr. Hewitt? Jake is convinced we need to go to California so that I can be treated by him. PLEASE let me know if you've had any experience with him.