tag:blogger.com,1999:blog-6399113720768483635.post6224755735978549108..comments2023-06-04T02:32:31.048-07:00Comments on My Journey with MS and Four Kids: New at Blogging, so be patient:)Tobihttp://www.blogger.com/profile/10037705764301852118noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6399113720768483635.post-70161034007558671532010-05-13T10:59:18.199-07:002010-05-13T10:59:18.199-07:00My friend Tomi sent me your link. I am in Utah too...My friend Tomi sent me your link. I am in Utah too and was diagnosed last year. I have so much hope in the theory of CCSVI. I am currently pregnant, but will be joining you in the quest to be treated as soon as I have the baby. Have you tried Inclined Bed Therapy? I feel it has really help lift me out of my fatigue. Here's my blog post about it: http://mymsnotes.blogspot.com/2010/01/inclined-bed-therapy.html <br />I'm following your blog. Good luck!Sarah Gibbyhttps://www.blogger.com/profile/08631499693509851377noreply@blogger.comtag:blogger.com,1999:blog-6399113720768483635.post-14198316543905780792010-05-13T08:59:54.628-07:002010-05-13T08:59:54.628-07:00thanks for sharing your info tobes. i love you and...thanks for sharing your info tobes. i love you and hope that some miracle will work out for you soon. i'm going to send this link to my friend karen that i have told you about. xoxoHeidi and Joschhttps://www.blogger.com/profile/01738924927635498697noreply@blogger.comtag:blogger.com,1999:blog-6399113720768483635.post-59682253419118486762010-05-13T08:09:31.821-07:002010-05-13T08:09:31.821-07:00Hi Toby,
my name is Kara and I know your MIL here ...Hi Toby,<br />my name is Kara and I know your MIL here in Germany. I had dinner with her and her husband about 3 months ago and told them about my MS. I believe I told her how I tried LDN for a year, (did not work), Copaxone for a year (did not work) not I have been on Tysabri for 3 1/2 years and I have been stable ever since. I was diagnosed 1994 and I am 40 now. I did not start on medication until I was 35, when I was finished having kids. I walk with a slight limp on my rt side as I never recovered from a "episode" 6 years ago. Would love to know if you are going to have the CCSVI procedure done. Please keep me posted.<br />Thanks KaraKarahttps://www.blogger.com/profile/05626784905639091991noreply@blogger.comtag:blogger.com,1999:blog-6399113720768483635.post-59415654637633988362010-05-12T21:09:33.933-07:002010-05-12T21:09:33.933-07:00I get to be the first to comment on your blog?!?! ...I get to be the first to comment on your blog?!?! I'm so sorry you have to go through this Toby. But you are amazing and I look up to you so much! I'm excited about your quest! Please let me know what I can do to help you along the way!brynnhttps://www.blogger.com/profile/11174137803509821619noreply@blogger.com